Last year I discussed The Urine Factor, here. Go ahead, I’ll wait.

Dr. Wonderful had prescribed a couple of drugs to help. It was something we were going to try. Because she is the world’s most sensitive doctor, she was concerned about Gage’s quality of life. And ours too. With Gage starting kindergarten last fall we were worried about his day at school and um the 4 accidents he’d have on an average day.

He started two drugs in July 2004 and after tweaking we had good results. He was urinating less frequently and wasn’t waking up soaked in the morning. We’d gone from changing his pull up at 11pm and 2am to one change between 11pm-2am. He was doing well at school. He was still having accidents, but not so many, and with the help of teachers prompting him to go during the day things were good. Tolerable. Stable.

Because one of the drugs can restrict blood flow, it can damage the kidneys. I mean, it can damage the already cystic kidneys. Yeah. Fun. So with the recent decrease in kidney function as a warning sign, the drugs were decreased. We saw almost immediate problems again with accidents during the day and soakings in the morning. More pee. More laundry. More monitoring his trips to the bathroom. More being the urine police. This should make the second first week of kindergarten fun.

Last week after a desperate “things are not so good” email to Dr. Wonderful (me thinks she wishes I only had her fax number) she ordered labs to see where kidney function is at after the med decrease. He’s at 1.9 creatinine and 77 BUN. So, we wait. Sigh. Adjust the meds. Sigh. Redraw blood for labs. Ugh. Wait.  Deep breath. Exhale.

Repeat.