Cyber control? I don’t have any.

I should not be allowed to Go*gle anything.

Here’s a list of things I have go*gled since learning Gage would need a transplant earlier than we thought:

Transplant for children’s hospitals

Immunosuppressant drug costs

Federal Medicaid Kidney Program

Survival rates kidney transplant pediatric

ARPKD and ocular motor apraxia research Dr. Wonderful

Preparing financially for kidney transplant

Live kidney donor criteria

Live kidney donor process

Insurance issues for transplant survivor

There should be a search engine blocker for parents of sick kids. They should not allow you to search for any kind of statistic relating to said illness. Ever.

We got the call from Dr. Matter of Fact regarding the test results. Not only was it like hearing a bad heavy metal band while sober, it was heartbreaking.

While Quinn’s results reveal that she is stable, Gage’s revealed he’s in active failure. His labs show that the kidney failure is causing significant problems in many areas. We’re changing some meds – an increase in Procrit shots, either in frequency or dose, and a couple of meds are to be increased. His kidneys are actually shrinking, because of the scar tissue, and it is indicative of being closer to transplant.

Dr. Matter of Fact said she thought transplant would be in 12-18 months. That was not something I thought I’d hear yesterday when I woke up and went to the Governor’s office for a meeting about the Medicaid we depend on as our secondary insurance – which we will probably lose. The Doc also said to call her at home if I have any additional questions. Yeah, safe to say I have more questions. But not ones she can answer.