It occurred to me over vacation that Gage could eat completely out of a convenience food store. You know, the kind that sell gas and lottery tickets, and slurpees and single cans of beer. Many of the items he will eat are orange in color and they are of the processed variety. I’m not proud of this fact. And it all drives me crazy. Enter single can of beer purchase.
I’d asked Dr. Caring if we should be seeing a nutritionist, but she essentially said "why bother" as we really aren’t trying to preserve his function at this point. We’re just trying to keep him off dialysis and hoping that the function he has will last until next May.
Gage’s eating issues are probably a combination of renal failure causing lack of an appetite and his food texture sensitivity issues. He’s a complicated little boy. Except with food. Orange food.
Julia,
Just back from appt. creatinine way up………..5:( Have not been watching the diet at all…the boy wants to eat and he wants to eat like a boy!! Go figure. So we now have to watch our protein and potassium very closely and labs once a week. Our neph says that he thinks we will make it another three weeks and then that is when tx is. Plus side…they miss 2 wks of school and then are ready to go back:) Keep fingers & toes crossed we make 3 wks!!
Talk to you soon
Love,
Rachel
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