I have many things I need to write about. None of which is really a coherent thought at the moment. So this will be my TO DO writing list. Feel free to add to the list or put in a vote for which topic should be first.
The effects of a sick child on a marriage and why people divorce. Why I get it.
Time. Time. Time. How to balance work and the new life, and life. And when to share with clients.
What I think about people who don’t want their kids to wear braces on their legs and feet to help them walk because of what other people will think. And why it pisses me off.
Gage’s amazing resilience and coping skills. The ones I didn’t really know he had until this past week.
The paper work. The schedules. The things I need to know. And how I’m in awe of people who do it with a lot less support than I have.
Keeping up the appearances of normal in our not-so-normal life.
Reality bites. My list of things that I hate about all of this.
Reality bites harder. My list of things I love about all of this.
School and behavior now that Gage is feeling good enough to crawl on the floor in the hallway and get all the kids fired up.
I hear ya. This is not the life I planned. When K’s music therapist said to me I must learn so much living with him, I felt like saying most of it I could live without.
K’s kidney u/s was normal yesterday BTW. Did I mention that to you? All I could think of was you and what you are going through when G came home and said that the u/s guy had spent *ages* on one kidney.
And yay Gage! I’m always in awe when my kids rise to the occasion.
Julia,
Can you explain what “normal” is……….I don’t believe I have ever heard of it:)!! So glad Gage is doing well with everything and hope that he gets the new kidney soon. Bryce had his first field trip yesterday to the apple orchard…..6 wks post tx. He never ceases to amaze me!! Keep me posted.
Love,
Rachel
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