I knew I wouldn’t be able to donate a kidney to Gage or Quinn. Nearly two years ago when this happened I’d felt that I wouldn’t be able to even though I tried to put it out of my mind. The day after the news Julian couldn’t donate I’d picked up a copy of my stone reports and delivered them promplty to the transplant team on Friday.
So today, just now when I got the call that I am a "multiple kidney stone former" and it wouldn’t be in my "best interest to donate" I had already known it and made peace with the fact. Am I sad? Beyond words. But if I let my sadness take over from the goal at hand, we lose. I will say I felt when she talked about my best interest I wanted to scream "But really, my best interest is seeing my child live! It’s my best interest for him to live off of dialysis! Really!" But I’m afraid they wouldn’t buy that.
The next step will be to send two (O blood) people over for blood work – for cross matching. They will select the best candidate from those two or if they are equal we’ll all decide who to send for the 2 day testing. At this point we have no idea who those two people are. But we have had several people say they would be tested. We’re so lucky and blessed that way. In addition at the weekly transplant team meetings today they will be discussing putting Gage on the active transplant list. And I assume that we have input where that is concerned. I hear it’s best for Gage to get a living donor kidney but know nothing concrete. I did want some more doctor input on this though.
All of this has my head spinning and tears barely visible around the edges of my eyes. I think I’m not balling my eyes out right now because that would be counter productive to figuring out the next steps and also I am pretty thankful it only took them 6 days to rule me out.
Small favors.

(((Big Hugs))) to you and your family.
Oh, gosh. I’m sorry.
I’m still thinking good thoughts for you guys.
God,
We’re doubting you.
Where are you?
Are you listening?
This is no time to mess around.
These are children, your children.
St.
Hugs. Thinking of you all and thinking good thoughts.
I think you and your family are amazing. I to have PKD. I think im lucky at the moment i was diagnosed with it at 16 after I wished to find out if i had it or not as my mother suffered from it. I am now 24 with a child on the way. I sometimes wonder if she wil be diagnosed with it. I do not suffer day to day with it at the moment and am not in renal failure at the moment. My specalist has told me I have a 35 pecent chance of it NOT getting worse if I look after myself. I jsut wanted to say that I am greatful that you write this blog as from now on I will be checking in on a regular basis to here more from you and your family.
I am a 77 year old male who had his first over night hospital stay at age 65. At age 70 I was diagnosed with CKD. With the help of a fine medical team, a very supportive family, and a very rigid diet I avoided Acute kidney failure for one year. After a while I felt so good I went off MY DIETE bad news. In December of 2004 I suffered Acute Kidney Failure and was put on Dialysis.
I have been on Dialysis for almost two years now. The first few months were hard then it became progressively easer. I have come to accept 3 hours a day 3 times a week dialysis treatment as a way of life. I have even started to travel.
I am fairly computer literate for my age and have visited most of the sites devoted to Kidney and Liver disease.
From first hand experience I know that CKD is not restricted to age, race or gender.
I have a suggestion for what it is worth. I think it is time for all originations devoted to Renal Disease to get together and elect a celebrity spokes person to make the public aware of the disease afflicting millions of men woman and children.
Julia perhps you are the one LOL Bill
Bill Hatcher email bidmup123@aol.com
Hello, This is the first time I have looked for other people who have PKD in their familys. I am 40 and was diagnosed with PKD 8 years ago along with my Daughter (15) and my son (8). Yesterdy i was informed that my kidney function was starting to fail and now was the time to start thinking of what is going to happen in the coming months and years. It has been good to read your blog and also read information about PKD through the foundation web site. I am still having problems finding a support group near me in England. I wish you all the luck in the world and look forward to reading a happy ending.
Regards Colin Green
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