Gage pees a lot. He could go every 30-45 minutes if we make him. He still has a few accidents a week and is nearly always wet to some extent and he also wears a couple of pull ups a night. That middle of the night pull up doesn’t just find a way onto his body you know. If, and that’s a big IF, we go to bed at a decent hour we have to set the alarm for about 2:30am and change the pull up. What usually happens is that I go to bed between 1-2am and that time frame usually works for a pull up change for both kids. Every morning, without fail, we wish and hope they aren’t soaked. If they are, we are hoping that their water proof pad is directly under them above their sheets. And if that didn’t work as planned, we hope they aren’t laying on top of their blankets requiring all bed sheets and blankets to be washed.  Every morning we hope.

After much discussion we have all decided that Gage’s bad kidneys need to come out because of the excessive urine – or polyuria. Who knew there were so many possible ways for removal to occur? We can remove them both now since he’s on dialysis and will hopefully have a transplant soon. Or we can remove one during transplant and remove one after. Or remove both during transplant (this is what is currently the choice of the transplant surgeon). We are trying to schedule an appointment with a urology surgeon now to discuss these options. The options are currently rambling around in my brain. This is not a good thing I tell you.

One of our doctors has voiced a strong opinion that one should be removed during transplant (same side as the placement of the new kidney, which is place in adomen in front) and one should be removed once we know the new kidney is working well. She says about 6 weeks post transplant Gage should have the other one removed. She wants us to advocate for that because she says if for some small possibility the transplant fails then Gage would have one kidney left to do at least something. If he has none we add a whole new complicated picture to dialysis and fluid removal.

It gets more and more interesting around here.