There have been some complaints that we parents aren’t pictured on our Photo Fun Friday pos
ts. Here’s a picture from the recent Walk for PKD that has us in our matching t-shirts. I think we also look decent. Except maybe I could have spent a few more minutes on my hair.
Our t-shirts say "Got Kidneys? Share a Spare!" We thought that was very clever.
This was a hard day on Gage. He’d not been feeling well. For the first time – ever – he’d not been able to run in the race. He was pulled for the entire mile in a wagon. Just the day before we had labs drawn and learned his kidney function was dangerously low. I knew that our doctor would want to start dialysis. I knew it and yet I didn’t believe it until Gage was being rolled in to have a catheter put in 4 days later. I’ve learned that my heart has the capacity to bear more sadness. As each phase of this disease progresses we accept more and move on. Partly because the kids demand it and partly because it helps the kids accept their own next step in the process. If we’re not comfortable with what is happening, the kids have more anxiety and us adding to their anxiety is not acceptable. They have to work through enough without worrying why we’re worrying.
So, there. Back to cute kid photos next Friday.

Genetics are very interesting… I know that has caused you problems… but your daughter looks just like you… and your son looks just like your husband… very interesting… nice to see you all together
hey, i tried the “email me” link and it didn’t work for some reason, so i thought that i would tell you this here. I would like to get tested to see if i am eligable to donate one of my kidneys to gage. so, if you could call me or email me and tell me what i need to know, i would appreciate it. thanks!
marcus
Tell Gage to hang in there! He’s got a small team in Chicago rooting for him not just as a daughter to a mom w/PKD but a teacher too!
My heart goes out to you and your family. I know you get tired and scared but hang in there ,GOd gives us extra strength when we think we can’t go another mile. in our thoughts, kathy
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