Quinn did absolutely splendid at her annual testing. It was easy-breezy getting her to the three locations within the hospital and we were done in under 3 hours. It almost seemed like nothing. You know, compared to kidney failure, dialysis, and testing for a life-saving kidney transplant.

I used to freak out about testing (HA! I laugh and mock you now you testing!). It used to be a hard day with both kids. Hard emotionally and just hard. Plus they were younger and hanging out a Children’s Hospital is no place to be if you are just passing through for the day. It’s exhausting. But being where we are on the journey now makes those days of testing seem simple. It’s all about perspective, isn’t it? We have a new perspective and we can never go back to the good old days.

Gage did remarkably well throughout our 2 days at CH. A CH is no place to rest though… say, let’s see – IF YOU ARE SICK. Because there is no possible way to rest unless you are sedated. Speaking of sedated. Gage is really funny to watch on the loopy medicine. This is given to relax him before we leave his side. And before we left his side we made sure to take video of him in his giggly, wild mode (pictured). Because we’re good parents that way. But we had to finish laughing our butts off first.

We heard back from the doctor about Gage’s liver biopsy. He has a mild case of bile duct malformation and CHF (which all kids with arpkd have so this is no surprise). I’ve not yet had time to consult with Dr. Google, but I expect that will happen later today. It means he will need a liver transplant later in life, but that sounds so normal and easy that it doesn’t even make me blink. I forgot to ask some questions, but I understand the doc is there tomorrow while we’re there for dialysis. How handy.