Gage is doing pretty good, all things considered (I realize I say that a lot, but there are so many variables in his world that it seems okay to use regularly, like a tag line…Gage Roberts, Living Well, All Things Considered). For all day Wednesday he’d been resting in the same position, not wanting anyone to move him. We were able to adjust his bed up a bit to help his lungs recover from the anesthesia so he wouldn’t need oxygen. He’d been in a contorted position all day with his neck angled to watch TV. His feet have been hanging off the bed outside of blankets and he didn’t want us to move him. It’s after 2:30am and my boy is wide awake. Smiling even. His nurse suggested we move him so he could watch Sco*by better and after we adjusted him and all of his wiring he said "Mommy, that didn’t hurt like I thought it would!" And he smiled. Genuinely smiled.
Progress.
Other news…I was able to have a nice visit with Jody. She had staff come in throughout our time together and I was so proud to say it was my son who had received her kidney and I was even prouder to say that her kidney was working great. She looked great. She asked if I had been crying. No, just tired I explained. Gage seems to be sleeping too much in the day and loving our awake time in the wee hours together with gusto. Lucky me. No, really, I mean lucky me. I love seeing my boy alert, smiling and taking ice chips, even at 2:30am. His teacher, Mrs. W, will be pleased to know that he announces what time it is several times during an hour. Then he’ll add: "It’s A.M. Mommy!" Umm, yes Gage it is…remember when we used to sleep in the a.m. hours?
Then: (post-transplant 1 hour)
Now: 
(27 hours post transplant)
And to make matters better, his 8:00pm Wednesday labs indicate the creatinine is remaining 0.6 with the BUN at 8. We love us some single digits. The docs have declared we can step down labs and only do them every 12 hours through tomorrow, then maybe every 24 hours for the rest of our stay.
Gage’s gently used kidney is behaving nicely, thankyouverymuch.
Good Morning! I’m hoping as I type that you both have found a way to get a little rest or at least a cold diet coke! Gage looks great……love to see that smile and so happy to hear Jody is doing well and of course that Gage’s labs are stable! Keeping the thoughts and prayers coming!
Love to all!
Kristen, Keith, & Josie
Good Morning! I’m hoping that as I type this, you and Gage resting or at least have found a cold diet coke. Love the picture of Gage……he looks great and of course love to see him smiling. Also glad to hear that Jody is well and Gage’s labs are stable. We are continuing to send many thoughts and prayers your way……many of our friends here in CT have you in their thoughts as well!
Love to you all!!
Kristen, Keith, & Josie
Oops sorry for the duplicate message…..I didn’t think it went through!!
Sooo happy to hear Gage’s numbers. Hope you both are able to get a little rest today. Also hope Quinn is doing well. Keeping you in my thoughts today. Hugs and kisses to you all.
Love Jen and the boys
Gage. Good job! Hope to see you back in school soon. — Alejandro
I love hearing “pretty good” — feel free to say it loud and say it often!!!!
Absolutely wonderful to see Gage perking up. He’s been through so much. You all have. Thank you for the updates. PLease know I continue to pray for Gage’s and Jody’s safe and comfortable recoveries.
This is just amazing to see how far he’s come so quickly. I can only imagine the joy of seeing him smile and NOT be in pain for a change. We’re so excited for Gage and your family! How in Quinn doing with out mommy at home? Take care of yourself. We really appreciate reading your updates and it was great to see the first post-transplant photos of Gage!
What fantastic numbers!! I am elated for you.
Tracy, Isabella & Michael (Cape Town, South Africa)
Dear Gage,
I was 6 years old when I went into the hospital to have a kidney REMOVED. I had one good kidney, but the other had died. I was very scared. I watched alot of TV but was kind of groggy from all the medicine. It’s funny, I don’t remember my parents being with me a whole lot. But I remember the TV, because “in those days” TV’s were not always in hospital rooms and my dad’s boss brought me one. He also brought me a ton of gifts including a very big stuffed dog I named Shag Shag. I dragged that dog with me when we went to live in Turkey, when we came back and moved to a new neighborhood. Gage, I kept that dog until I graduated from COLLEGE. I finally gave him away, but I had a smile on my face because I remembered how good he had made me feel in the hospital.
I had 22 stiches on my side. They were with black thread and so very ugly. They were the scariest part. I remember when the doctor came to take them out. I had to roll onto my side and could hear him snip at each one. That’s how I remember how many stiches so well. He had me count as he did it. Yuch! Now, I still have a scar, but it’s very light in color.
You’ll feel really good soon but be patient.
Love, Marla (Mona’s Mom)
PS. Say hi to Quinn and mom and dad for me.
Stitches. I know how to spell stitches.
Marla
Thank you for posting the photos. It’s so great to see Gage smiling!
Always in our thoughts and prayers,
Lisa, Jeff, McLaine, Jaimeson, and Andy
Gage seems to be sleeping too much in the day and loving our awake time in the wee hours together with gusto.
It’s the hospital. /know-it-all
No, seriously, I could not sleep at ALL during nights in the hospital either; sometime after the sun rose I would finally conk out from tiredness/medication–I was on MORPHINE and still had trouble sleeping, what was up with THAT? (For the record, no idea if my mom managed to sleep in the pull-out bed beside me. I just remember learning that no, you can’t really die of boredom…)
So happy to see him smiling and know his pain’s decreasing. Go Gage!
JULIA-
I AM SO HAPPY TO HEAR THAT ALL IS WELL WITH GAGE. I WILL CONTINUE TO KEEP HIM IN OUR PRAYERS. I MET YOU AND YOUR FAMILY SEVERAL YEARS AGO IN CALIFORNIA FOR THE PKD CONVENTION. I WANT TO THANK YOU ALSO FOR ALL OF YOUR HARD WORK AND COMMITMENT TO OUR CHILDREN’S DISEASE. I WILL CONTINUE TO STAY UPDATED THROUGH YOUR WEBSITE AND WILL BE THINKING AND PRAYING…
SINCERELY,
KAREN BERG
(MOM TO COLLIN – 3 YRS. OLD – ARPKD
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