Gage had an appointment this morning (after a long traveling day coming home from the PKD Convention) at transplant clinic. Lots to report and then some…

  • Gage’s gently used kidney transplant is 3 months young yesterday. Happy Kidneyversary Jody. We love you and your kidney. The kidney is working beautifully but you always believed it would.
  • Gage has a biopsy scheduled for July 17th — standard 3 month mark here. They super sedate him in the office and use a needle to get a nip of the kidney to really make sure there is no rejection. They don’t expect it since Gage’s kidney function labs haven’t moved at all from completely normal but we’ll have confirmation and that will be good. Did you know that not every kidney transplant kid in the country has to go through a 3 month biopsy? Learned that this weekend. I’m not so sure about the sedation because you know, sedation meds do the OPPOSITE of what they are supposed to do on Gage. I told the nurse that and she said "oh, not this one!" Okay.
  • Gage is remaining steady at 55 lbs and has for about 5 weeks. His nutritionist is thrilled he’s stable and happy with his progress nutritionally.
  • Gage is now 2.5 inches taller than he was when he started dialysis last September. This is a huge victory. He’s now not below the 5th percentile for his age for weight and height, he’s somewhere around 13%. And that could mean it could continue in this nice direction. And if it does, we may not need to put him on growth hormones at the post transplant 1 year mark. We have a ways to go, but it is an incredibly great start.
  • They reduced a BP med so we’re only having to dose it in the morning. We’re all happy about that. Hope his BP maintains. We’ll be doing some checks and double checks here at home to see how it goes.
  • I am working on a lot of posts. I did them over my time away, but my computer was wonky, so there you go. No posting while away.
  • I got to take a picture of Gage and one of his surgeons – the one who put the kidney in – and I’m thrilled to have it.
  • I also need to address the emotions I am going through. They are still there. I’m finding my way. And realizing that people still don’t want to hear the nitty gritty parts about going through and living with a transplant (for us), but I’m going to tell them anyway.

More later.

But my boy! He’s growing!