I am smack in the middle of some big emotions relating to the transplant and raising sick kids. I started a post, then had some questions about where it was going, so I sent it to Dawn over at This Woman’s Work. She is pushing me to write more in depth about my feelings surrounding our recent experience. So that is what I am doing.
To my family and BFF and people who love me in real life – The Village – I beg you: DO NOT FREAK OUT. I will be okay but for now if I seem different. A little off. That is why. And for the record…I believe it is completely normal to be going through this although I can’t seem to find anyone else who has been through a similar experience talking about it openly.
But I am sad. And it is real. And I’m working through it.
Ok…not FREAKING OUT…yet. Will monitor. And be patient. To a point. But don’t count on me sittin’ back too long.
It’s hard to be off kilter. I have faith that you will work through this and remember anything that your “older sister” can do, let me know.
XXXXOOOO
email me if you need to talk. I know what you are going through right now.
Hey I have gone through far less with my kid and rest assured that I freak out because he had surgery which is an ongoing concern and will be for the rest of his life unless we get really lucky. He’s still sick. Visits to the ER and to surgery clinics are now normal. It ain’t going to go away.
I think what you are going through is normal. It sucks. I also find it hard that other parents don’t seem to want to acknowledge that it sucks. Yes, I’m grateful that modern medicine keeps my kid alive but geez. I didn’t sign on for this with the parenting gig. Medically fragile kids are hard work mentally and emotionally.
And what we deal with is minor compared to Gage and Quinn.
Umm it’s been a long day here with 4 hours sleep last night and a fascinating insight today into the professionals who are supposed to know what to do with my son when things go wrong………
I meant that what *I* go through with K is nothing compared to what you go through with Gage and Quinn.
Take your time sorting through your emotions. I know we will all be there waiting to listen when you are ready!!
Thinking of you.
Our littlest girl,
You and our dear son-in-law have made it through a personal war and if you weren’t having post dramatic stress, you wouldn’t be normal. It has been an incredible journey and your dad and I are amazed and oh so grateful for the strength the two of you have done in protecting our youngest grandchildren.
It is difficult, isn’t it, after holding your breath for so long?
Love,
Mom and Dad
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