Obviously today leaving for a 9:00 clinic appointment with Gage I was full of hope. I was hoping that we could have a quick, clean appointment with no behavior problems that involved cleaning up something Gage pulled off a shelf or a wall.

We entered to find that today was the day that a new parking deck was opened for full use. This new deck also makes us go through the new entry to the hospital, which is lovely. It involved a few extra turns, a very long walk (had I known I would have used a wheelchair or stroller for Gage) which had Gage in pain, and arriving late. We were there for nearly two hours, which isn’t really a problem during a normal week, but dang, I was way behind on patience and stamina today.

After waiting some extra time to have labs drawn, the tech asked Gage if he wanted some numbing spray. He said yes, but when she said they didn’t have any, he lost it, then I had to step out because I was upset. Just at everything. Being behind today, not feeling completely well because of the remains of the stone debacle, Gage was upset, he would be getting to camp a few hours late, I still had to work and to pack and well, you get the idea.

When I returned to the room the doctor said he can have labs just once a week now and not to worry about getting labs today. I was very happy about this. This offer was a gift for Gage, of course, but I think they really did it for me. And I am eternally grateful.

One of the transplant nurses called me this afternoon to check on me. And it brought tears to my eyes because of her compassion. A huge thanks to her. I hope she knows it wasn’t anything that happened today in particular, or anyone’s fault, it was just that it all happened today.

But we’re packed and ready because of my friends and family. So we’re off…to Minnesota!