When we ran into the doc and coordinator on Tuesday while we were getting Gage’s labs done I whispered that Gage didn’t know that the Rapamune was causing the ulcers. It would not have been a great idea to tell Gage that and give him a reason to fight us on the med. Just no reason. When the doc said that we might have to get off Rapamune because of the ulcers I’d made a cutting the throat gesture to him…and he said "well, from R back to P."

So that is where we are. We’re to double up on the Prograf and Rapamune for the next 24 hours then pull him off Rapamune in two days. We might try it again in the future, but for now, no R.

I’m relieved. There is a twinge of fear (isn’t there always some of that though?), since Prograf over the long haul can be nephrotoxic. Because, don’t you know, TOXIC and NEPHRO aren’t great words when they go together. Or maybe toxins aren’t ever good for our family.