Sep 20
One of the transplant coordinators called early this morning to tell me that Gage’s Rapamune level is low. This is not great news. We were hoping to go down on the dose, but that is now not possible. She said she’d call me back after speaking with one of the doctors. I’m not sure what the options are now, but something has to be done. Back to Prograf? I have no idea.
All I know is that Gage has quit eating food with any regularity because of the ulcers in his mouth. He’s essentially moved himself to a liquid diet. He is beginning to lose some weight. This is not good.

I am so sorry-never any rest or a dull moment for you guys. Call me if you want to vent-I’ll talk to you soon.
Jen and the boys
Leave a comment