People have been asking me about Quinn’s test results from the day after Christmas. Quinn had labs, an ultrasound on her liver/kidney and an echo cardiogram. Her labs came back and they are elevated (duh) at 1.4 creatinine. This is her new normal though. In the last 6-9 months it has been increasing from our comfortable 0.9. Dr. Wonderful (out of town doc) will surely notice this at our appointment in February and comment on the increase in number and she’ll provide the percentage of decrease of kidney function for the parental benefit. We also see Dr. Kind sometime in February (local doc) to discuss Quinn’s general health and go over the results.

Generally, besides her labs, everything looks the same. She’s having some problems that we need to discuss. She has a lot of stomach pain. She’s extremely tired. So tired that she would probably sleep 13-14 hours a day if we let her. She can’t do any thing that requires too much energy past 4:00 after a day of school. Sadly, I think her hemoglobin and hematocrit are just above the line where she would qualify for EPO – which would provide the much needed energy. It’s crazy to want to wish for lower numbers so she will be able to get EPO, but that’s the reality.

Dr. Kind still thinks that Quinn won’t need a transplant by age 8 like Gage did. She thinks we’ll get a little while longer out of Quinn’s kidneys because her growth hasn’t stalled out at all. Her curve on the growth chart is a nice, normal curve. I need to go back and chart Gage’s creatinine and BUN for this age and see where it was at. I do know, from memory that by the time Gage was 6 1/2 (Quinn is just 6 1/4) his creatinine was already over two.

So, we wait. We wait for Quinn’s health to take a turn in the wrong direction, then we start over again.

We know a lot more now. This is both good and bad. February will be a telling month for our little Quinn I think.