We’re headed soon to see Dr. Wonderful on our day trip with the kids. As always, I look forward to these trips because I always learn something – even if it’s not great news – about the care of the kids, their symptoms, their disease progress, or research.

Recently, I’d sent a note to her nurse about trying to get a bit of Gage’s donated kidney tissue from Dr. Wonderful’s center to send to the NIH for a study the kids are in. Dr. Wonderful sent me a note that she wasn’t sure it would be available for us…consent thing.

She asked (for the third time) if we were ready to discontinue seeing her now that Gage is transplanted – at least with Gage. I sent back an email bluntly asking if she was trying to get rid of us a patients. She called me immediately and said absolutely NOT, she was just trying to give us an out if we were tired of dragging the kids to see her. I said I was trying to give her an out if she was tired of seeing us, or if she just saw it as time for us to move on.

“No!”

“Me neither!”

Then she replied, “Let’s never speak of this again.”

Am looking forward to the appointment, as I always do. Love her.