There are many changes going on in my life right now. We now have a real office. I have to get up every morning, shower, get dressed and go into an office. I think this is mostly positive. Except when I want to be home working. And now that all of my work is at the office, I’m a little lost without some of the things I am used to working on at night.
I’m used to blogging at night. But now I only have a laptop at home and no real office chair and it’s different. I am sitting in my (old) office at home and on the floor typing this. Not great for the back and elbows.
Dawn upgraded my blog and my pictures aren’t loading. We don’t know why. I’m at her mercy because crap, if she doesn’t have a full life. So that is why last week’s photo is titled, but no photo accompanies my post. And you should know, it is a very cute picture of Quinn. Also, the post notification isn’t working anymore. I guess it doesn’t work with the upgrade of Wordpress. So if you are waiting for a notification in your email box to come and read, you will be waiting for a long time.
Gage is being Gage and challenging, but he is doing okay. For Gage. Other people probably think he is not doing so good, but they aren’t looking at the whole picture that is Gage. He had his first recital for since beginning piano just under 2 months ago. He was first in a group of 16 students. He did awesome. He would normally shut down and not want to participate in such a public event that showcases talents, but he did it. I cried. Because he played “Old McDonald” and “Merrily We Go Along.” Seriously. How lame of me to cry as Gage would say.
Quinn’s ped nephrologist doesn’t feel we need any intervention right now based on NIH labs. I hope to talk with her about her liver and how we can help with the itching and tiredness.
I just finished an auction item for Gage’s class for an auction this weekend that I won’t be at! I’m going to be attending a board meeting for the PKD Foundation. Oops! Forgot to take a picture.
I want to blog about many things, but am having trouble sitting down to do it. I want to write about Gage and how much he’s changed. I need to do this so that I record his progress. Because in the everyday world of living with Gage it is hard to remember. I want to write about being a mutant family, because our visit at the NIH solidified the weirdness of being a mother in a mutant family. I need to do an installment of Spoken in the Mutant Family Household about the conversation with Quinn at the airport about Obama with two African-American women.
I am loving being able to sew and create at night. Sadly it is still something that is keeping me up late. Am still working on balance with my night time. Because I do love a quiet house to sew.
I’m doing some creative writing and it is been good for me. It is cheap therapy. And I can do it in my pajamas which is an extra bonus.
The house is still in disarray. I’m very stressed out about this because when the house it out of order I am not as efficient with my time and that is just pissing me off. It’s making me crabby. Which makes me tend to snap at poor J. Which is bad, because he is a really nice person that doesn’t deserve me snapping at him.
But about Julian. I will say I haven’t seen him this happy in a long time as I watch him get ready and go into the office. He is almost giddy. He is very happy to be in a real office. I’m still torn, but know it will be good for the business.
I must go to bed! Quinn is trying to sleep without pull-ups! Which is amazing. But also means that probably her kidneys aren’t working like they used to and it’s noticeable now with her night time wetting.
This is such a random post. Sorry. One day soon, I’ll return to our regular boring writings, instead of this disjointed writing.
Special hugs to Jen as she worries about her baby Parker and toddler Jackson. You and your babes are in my thoughts.
