Quinn’s labs are showing that insane pesky high BUN at 92 that is so pesky, I have the good Doc saying pesky. A complete 20 point increase. Doc says it’s school and she isn’t getting enough water maybe, which I probably agree with, so we’ll move for water bottle in the classroom. Fine. We’ll retest in two weeks. Sadly that doesn’t change that she is staying dry even though she is my pro water drinker. A BUN of 92 is not acceptable.

Hard to shock me I guess, because the Doc used the T word with Quinn and I did not flinch once. Each and every time I talk to Dr. Kind we talk about how quickly Gage’s kidney function declined and how scared I am that will happen with Quinn and we won’t be ready. She asked about donors again to make sure we were thinking ahead. Why YES, we have been thinking ahead. About 7 years ahead, if truth be told. I think we have three people – 2 local – that will be tested for Quinn, if their status as WILLING and HEALTHY potential donors is still as it was about 20 or so months ago.

Quinn’s hemoglobin is just within safe but her hematocrit is low, so we are going to try that angle for EPO injections with insurance approval that will help with my cute girl’s energy level. Not sure insurance will pay at this point, but it is worth to check for her quality of life. Shots, then maybe, for Quinny.

So, if you are wondering how I distract myself from my son’s current death talk and clinical depression at age 9, pull up a chair and let’s talk about my nearly 7-year-old daughter’s impending kidney transplant!