• Gage and Quinn have had over 100 medical professionals and therapists that we’ve seen (or see) regularly.
  • Gage has had 500+ therapies since he was 18 months old.
  • Quinn has had her labs done roughly 50 times.
  • Gage visited the hospital for labs about 50+ times the year after transplant.
  • Gage’s transplant cost roughly $175,000
  • Gage’s dialysis and catheters cost roughly $90,000
  • Our insurance is $2,000/month.
  • Quinn has had roughly 350+ therapies since 4 months old.
  • Gage currently takes 5 meds, twice a day (except 2).
  • Quinn currently takes 9 meds, twice daily.
  • Quinn started using a walker at 14 months and used it for 14 months.
  • Quinn’s meds cost us about $300 out-of-pocket each month. Plus courier charges, $8.50 a pop.
  • Gage’s meds are covered for now. But at the three year mark will probably cost about $700-900/month out-of-pocket.
  • Quinn and Gage have had 5 pairs of orthodics between them.
  • The number of IEP education meetings I’ve had for the kids: approximately 50.
  • Phone calls to doctors/nurses: approximately 300 plus.
  • Lost sleep due to worry: countless hours.
  • Jokes made at the kids’ expense: numerous.
  • Dialysis treatments for Gage:73.
  • Hours a week just planning for the kids’ health care and educational needs: 7

The list goes on…but I need to go make appointments for the kids for labs.