I guess I needed a short break from the blog. I’ve been enjoying time with friends and family. We had our Christmas last this year, just yesterday, so the platters and serving bowls are just getting put back where they belong and the pink pudding (don’t ask) and squash casserole are still yummy on day two.

I have to get back on some kind of routine because there is still a lot to be done this week. Tomorrow is the long-awaited-and-didn’t-need-to-rush-it-after all liver appointment. They mistakenly (?) didn’t look up the ultrasound images and we had that horrid day at Children’s Hospital that left me in tears and wondering how they manage to pull of extremely well-timed, successful transplants, yet somehow they do. Quinn’s labs are “stable” for her right now and we have a little time until transplant. This is both good and bad.

We are also trying to mess around with Gage’s meds a bit because of the sleeping issue. We tried Medadate (?) thinking it wasn’t as long lasting as concerta, but it didn’t help rest any better. So, we’re going to try a sleeping aide for a bit to see if we can get him into the habit of sleeping again.

Gage is leaving town in the morning to go with his cousin for a few days and we’re all happy about that. He could really used the change of pace (we could too, because he’s exhausting) and he loves being with the cuz, so expect to have no incidents. Unless his cuz asks him to do something illegal, because Gage will do it, and that wouldn’t be fun to get post-holiday call from Auntie.

My BFF is in town for some more days and we are headed to massages on Tuesday and we’ll likely see a movie or two this week. Without Gage here, it simplifies things a little bit because Quinn is much more suitable for bring alongs…just about anywhere.

Quinn’s ears are healing nicely, the Internets People who sent earrings will like to know. We’re counting the days until she can switch earrings and the honored first pair keeps changing. I’ve told her she can change them on Inauguration Day – that is exactly 6 weeks So really, aren’t we all counting the days?

I have a little bit of work to do, but not much, so I’m looking forward to the down time. I need to get going on organizing some pictures for scrapbooking (I still haven’t done Gage’s pages from transplant…um…avoiding much?) and cleaning my home office/craft room.

We had to do labs for Gage again on Friday. I’m anxious about this because his numbers are off slightly. You never know it’s it’s a blip or a trend in the wrong direction. It’s always like living on the edge of another bad day. Must call the transplant team for results tomorrow.

That’s it for now, except I’m sending Quinn’s kidney failure info to another transplant center to get their opinion. I’d have to fight insurance to go out of network, but it can’t hurt to see what their criteria for transplant consists of, right?

Oh! And I’m happy to report that Quinn’s EPO shots are down to once a week. So now apprently, only once a week will she tell me she hates me. That is until she becomes a pre-teen.

Quinn’s Dear Santa Letter made the rounds through the PKD Foundation to a local TV station (WXIA, Ch. 11/NBC) contacted us to do a Christmas Eve story on Quinn. I don’t know how long this will be active, but here is a link to the written story and the video. Wait for the video to load – it’s on the right hand upper side.

Happy New Year week people!