3 comments for “If you’re stopping by…”

• Don Gallegos on 25 of December 2008 at 9:43 am:

  I also have PKD I was diagagnosed 13 years ago, BUT I was forturate enough to be able to make lifestyle chanmges that have had a positive affect in that the transplant thast I was told was 5 to 10 years away, has been put off (I am now almost 70 years old) and at this age I am NOT going to have a transplant. Yhere are just too many other people like your children that need the very scarse organs more than I do.
  I hope that your daughter gets her Christmas wish.

  Don

• Chery on 28 of December 2008 at 7:21 pm:

  Today I was wallowing in self pity. I too have PKD and I’ve been suffering for around 15 years. I have days like today where I want something done……NOW! I just can’t stand it anymore. I’m tired of the “I’m sorry there is nothing we can do for you.” answers.

  Then I came here. I saw 2 absolutely precious children with a loving mother and I wondered “would I rather be you…..or me?” It all gets put into perspective at times doesn’t it?

  Knowing what your children are enduring, I just want to hug them and keep them safe right along with you. In the end, I’d rather be me.

  Much love from Wisconsin!

• Karen on 29 of December 2008 at 5:02 pm:

  Hello to all. Just wanted to send my prayers and wishes for a HEALTHY and happy new year for your family. My little boy also has PKD due to a birth defect with his ureathra. We go to Egleston twice a week for hemo. He’s too small for transplant yet, but we are growing and gaining slowly. Hope your little sweetheart gets her wish soon!
  I’m a follow blogger too, but keep Matthew’s stuff primarily on his caringbridge site. Here’s my blog: http://relationactions.blogspot.com/
  God bless!

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