There are a lot of new Mother’s who’ve recently had babies with ARPKD or are waiting for their approaching delivery date. In many cases recently, more often than not, babies have died as a result of ARPKD.

My friend Michele has taken a lot of calls and emails lately from newly diagnosed parents of babies with ARPKD. The PKD Foundation has both of us listed and we are both getting calls/emails. But she is getting more. And she has graciously offered to let me forward people who’ve contacted me to her for support. She’s offering hope along with facts about the seriousness of an ARPKD diagnosis.

It is a hard Mother’s Day for many Moms who’ve lost their babies. And I wish them all peace. Today, those Mothers who’ve  lost a baby to ARPKD are on our minds especially. We are so sad for them. And it brings home the knowledge of how lucky we are to be mothering our children with ARPKD this Mother’s Day.