We are in crisis mode around here. Gage has been having trouble and we are trying to figure out the game plan for the next however long. Until the next time we need a new game plan.
Gage is complicated. He’s got issues on top of issues and we are constantly sorting through them all. Gage has had developmental problems since about 8 months old. For nearly 10 years he’s been chasing after a goal. Always behind. Goal after goal. For 10 years now he’s been evaluated, tested, pushed and pushed. We’ve fought for nearly every step walked, every letter on the page, every word pronounced properly, every single item learned. We, as his parents have fought hard for his learning. But he had to do the work.
And then on top of that? He had to fight to live. Years of testing and monitoring and medication. Years of his body giving up on him and feeling sick. For an unknown amount of time he couldn’t concentrate on much so he wasn’t able to learn as he did before and he struggled more. Then came complete kidney failure, near death to dialysis and treatment until a transplant, for which he didn’t have the maturity to deal with the emotional component.
It’s no wonder he’s having trouble coping with life. The health and developmental odds haven’t been all that kind to Gage and he’s working through the issues associated with the hand he’s been dealt. We all are.
We navigate each new problem with a best known solution at the time. I am constantly trying to figure out how to deal with the new problem that arises from Gage’s behavior. That includes just about every behavior plan on the planet, a couple of meds and an array of tactics that involve more discussions and tears and research than I care to recall right now.
Gage is the way he is because he just is. He’s the way he is because of many things. A mixture of how we parent. A mixture of the experiences he’s had in his 10 short years. So when people judge me and then email me about my parenting techniques, I get a little pissed off.
I’m extremely sensitive about parenting Gage. I sometimes blame myself, but really, that’s just because that’s what parents do. I don’t really think that I’ve messed Gage up with how I parent. Gage is just Gage. It’s my job to always try to reach the real Gage and give him a voice.
Do I do things wrong sometimes? Sure. Do I second guess a situation with Gage and his behavior? Of course, what parent doesn’t? But I know Gage the best. Not you. So you have no right to tell me that Gage is lacking discipline. For starters, it’s not true, but the bigger problem is you have no idea what is involved in parenting this child and what works and what doesn’t.
So shut the hell up.

Love and hugs to you…shake the ignorant ones off, they know nothing of what they speak. It is easy to say from a distance, no less, what is the best course of action. There are so many layers of emotion wrapped up into these little ones with extra needs. It isn’t easy-some days are just getting through one minute at a time. You are Gage’s strongest supporter and he wouldn’t be where he is today, if it weren’t for you. You fought tooth and nail for him to be helping-you begged the system to pay attention to your child and do something.
There is NO ONE better equipped to handle whatever comes down the line for Gage…because like you said-you know him better than anyone else.
Love you (sorry, I feel angry for you!!)
Jen
Jen,
I take every word you say to heart. You have and are going through so much with your little guys that I KNOW you know what I am trying to say when you comment. Your support leaps off the pages and I thank you. I thank you for always being there.
Too bad folks can’t live the mantra to be more kind as everyone is fighting some kind of battle.
Gage is too dang smart and that makes it all harder. If he wasn’t so smart and so MUCH and so all these things that are pretty wonderful things, it’d be a lot easier. God know what he was doing when he hooked you two up though because it’s clear that you know what he needs, you know how to get it and you are as quick on the uptake as he is so you’re always ready to change things up when it’s clear he needs something else. And discipline, consistency, loving firmness? You have those in spades. Anyone who thinks otherwise just hasn’t spent any time reading you/watching you/knowing you. Screw ‘em. (I’m mad just thinking about it actually. Idiots.)
I was going to respond and thought better of it…it is known as “restraint of pen and tongue”. He is a sad little boy.
wow sorry you’re dealing with morons. You guys do a great job with Gage. Here are some good vibes to get you through this phase.
I wish people could just be supportive and keep their negative two cents to themselves? I’m sorry that your parenting skills were questioned. That is just unfair. But in the grand scheme of things, those people aren’t that important – what they say isn’t that important. What is important is that Gage is loved, cared for and parented by a wonderful Mother!
Ugh, I relate to your sense your frustration in this post. It’s true, we do the best we can and that’s what we do. Hindsight is 20/20 isn’t it? And yes, despite all the blood, sweat, tears, joys, triumphs, etc., we will still not get it perfect because there is no perfect parent. Be proud of your efforts. I love my twenty year old son with all my heart, but DANG he is also the source of all (well, most) of my gray hair without a doubt!! Sending supportive thoughts to you and your family.
As my friend Bono says, ‘And don’t let the bastards grind you down.’
I was so proud watching Gage cross the stage at Awards Day, today. I am so sorry that, on top of everything you have to deal with, someone decides to add to it with their own opinions and negatives comments. Thinking of you today, and every day.
I love you!
I’ve read your blog for close to a year and have never left a comment for you. Many, MANY times I’ve struggled with finding the words that might do some sort of justice to the feelings I had for you and your family and the many MANY wishes I wanted to send your way. Gage’s way. Quinn’s way. Please know, that for every 1 person out there who might question your parenting of Gage and Quinn, there are countless others who find inspiration in your writings and know that you are doing the very best for your little ones!
How dare someone criticize your parenting! Until they’ve lived your life and felt your love for your son, they have no idea what you are going through. Do they not think that you would do anything that you thought would help Gage? Grrr… It makes me so frustrated. I’m so sorry. It’s easy to say “don’t listen to them” but I know it’s not that easy and it still hurts.
Yeah! So there!
I’m indignant that someone would feel they could parent Gage via internet better than his own mother could in real life. It’s just…beyond…ugh!
In unrelated topics – I so wish Bono was my friend.
UGH! I work with a kid who was a bit like Gage behaviorally–defiant, deliberately hurtful, etc. I wondered how he was being raised (sorry ^^) but I would never have DARED say anything to his mom, because I knew zilch about the situation and it wasn’t my place. (And then thanks to his amazing teacher, he’s gotten a lot nicer.)
I’m not horribly religious, but “judge not lest ye be judged” comes to mind…
You are a fantastic mom and obviously doing everything you can. So there.
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