I hear (through a very reliable source) that Cheryl is approved to give Quinn a kidney. Kinda. Sorta. Probably. No really, she’s mostly approved, almost completely, depending of course, except for one little detail.
That Liver. The one we looked at today closely with the eyes of an ultrasound Doppler thingy. Quinn’s also been put back on a liver med she was taken off of in December and we’re hopeful her liver numbers will come down. We retest next week (I’m shooting for Thursday to take her so I can follow up with liver doc Friday).
After I spoke with our transplant coordinator I told Julian, then called Cheryl. I said…”Hey, I guess we didn’t have to wait, you are apparently approved by everyone, and so you can donate to Quinn as soon as the liver team clears her…so I guess this is a kinda, sorta approval and this is probably going to happen.”
I know, anti-climatic, right? But we were still thrilled and thankful and Julian and I sealed the news with a kiss at the office. I could tell Cheryl was happy and excited to be this far along, too. I figure when we know for sure, for sure (that means when a surgery is scheduled we can have some kind of celebration with Cheryl’s family.
Until that day we need to wrap up some things…
- I need to confirm with a doctor a new med protocol.
- I need to see if our application for a medical spending account is/was approved through a non-profit here – they match funds – and then use the money for meds, etc.
- I need to get confirmation of the removal of Quinn’s kidney.
- I need to get someone to head up a little care team for Cheryl and her family for food and such during her recovery.
- I need to finish the process for applying for medicare/medicaid for Quinn.
- I need to make a work plan for me as I am the primary person for all things medical.
- I need to make a care plan for the relative we’re helping while we’re out of pocket.
- We need to decide about timing for surgery – rush and get it done ASAP or wait until after school starts. There are a lot of factors, including; work flow, personal, school start, Cheryl.
That’s enough for now, I guess. I need to go to bed so I can rest up.

I am so happy that one hurdle has been successful! Now, I wait and pray for Quinn’s liver to behave and respond to new med…Love you guys,
Jen
Oh, and by the way, Cheryl-you are awesome!!!
Jen
Oh my stomach’s flipping from being excited reading this!!! So next Thursday, eh? Sending lots and lots of “settle down, liver!” vibes!!!!
Congratulations and virtual hugs to Cheryl and her family.
Now — Liver, please cooperate. Julia’s kidney stones, please cooperate. j/k – just thought I’d inject a little humour.
No need to tell you how/where we can help. Keep us informed on the side so that we can plan our day(s).
What great news – one thing checked off your list and now onto all the others. You are an amazing mom Julia!
Somedays I find myself asking “What is wrong with people these days?” and then it’s things like this that make me say almost everyday…there is nothing wrong with people. We have amazing people on this planet and we need to remember them everyday…not the ones that really are not grateful. I’m so excited for you Julia.
Love Marlene
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