It’s been a busy week of fulfilling some work that has to be done for all the special needs loved ones in my family. Just the short list…

- Two appointments for my nephew. Sent off for some paper work that might allow him a chance to volunteer somewhere and had to send some follow up paper work for him.

- Filled out a questionnaire for Quinn – a transplant med fund raising account. I hope we qualify. They match up to $10,000 that you fund raise. An awesome program from an organization called Georgia Transplant Foundation.

- Faxed Quinn’s labs to her transplant team (labs are ordered by her nephrologist). They are concerned about her liver numbers and the numbers are being sent to the liver doc – might mean hold up on transplant (that is, IF our potential donor is approved) to get clearance from liver.

- I sorted about 200 sheets of paper from the last few months for the kids – medical and educational. They are sorted but not filed yet.

- Picked up and working on getting the paper work filled out for the Special Ed department for Quinn’s possible home bound schooling at the first of the year IF she gets a transplant this summer. Delivered said paper work to her doctor to sign. Need to get back to school in the next few days.

- Found two buried prescriptions for Gage (one controlled substance and not easily replaced) and had one filled. Then left it in Julian’s car. Which was parked 25 miles away at the airport. Of course, Gage needs the med in the morning, so a trip to the airport with Carol midday to locate his car.

- Filled out an 8 page questionnaire on Gage’s behavior/personality for a possible group therapy camp this summer. The camp is $900 (2 weeks, 3 hours a day). Double ugh. There were questions like…”What strange things does he do or collect?” and “He is mean to people. Very True? Somewhat True? Not True.” That was some fun, let me tell you. Gage is in crisis even if he is holding himself together (barely).

- Locate two teacher questionnaires to turn into the group therapy people. They would be located in the 200 sheets of paper. Deliver it all to the people.

- Take paper work and nephew to an appointment Monday. And follow up with two calls for a follow-up appointment to the first appointment.

- I had to filled out Emergency Contact forms for Camp Invention that the kids are in this week – always takes a long time because I have to list meds and phone number to very important people – like their docs.

- I had to get some important papers put in our safety deposit box.

- I did invoice some clients – which makes many people in my life happy.

- Tomorrow, another appointment for the nephew and paper work for a program for him. Cable company is coming to replace the DVR box.

- Collected and noted the amount of urine Quinn output in a 12-hour period. Got report to transplant team. Am advocating for removal of one kidney.

- Last night around 12:30am I started writing some copy for Julian for a conference. He didn’t make me do it, but I wanted him to be able to look it over this morning because his deadline was today to get it to his email blast person, who is going on vacation.

- I did get to organize and file a bunch of stuff at the office today. I think I get more done when my beloved it out of the office.

That’s about it. For a moment today when emails were flying between Julian, QPD#1, GD#1, QPD#1’s husband and myself about Quinn’s impending transplant and schedules and news about hearing or not hearing from coordinators, then news about Quinn’s worrisome liver numbers I kind of freaked out. I mean just for about 1 minute (I’m serious), then I remembered that it’s just best to keep your expectations low. Like we don’t think anything for us will go smoothly so we expect things like this.

At least I was distracted by paper work.

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