I’m here in Chicago at the PKD Foundation’s training and Convention. I get to be with friends that I have developed over the years; special, special friendships. It is so fantastic to be understood without saying a word.

I’ll be forever grateful for the opportunity to be among these people and to help serve with them. Being with people affected by and with PKD is always a moving experience for me; one that keeps me motivated for a long time.

I get to celebrate the victories of life and the sadness of fear with people who don’t need an explanation of why. My close friends here, especially, allow me the chance to scoff at the ridiculousness of my life. I can laugh and I can cry freely without the fear of making other people uncomfortable. It’s a gift they give me each year and one of the reasons I come back.

I’m so thankful for Julian recognizing that I belong here, too. Because without his support I could not do the work of the Foundation.  I’m thankful, too, for the many people in the Village (including my sister Tammy who just cleaned my house) for helping J take care of the babes.

I can only express my thanks in going back recharged to keep fighting. To end PKD, to help my kids and Julian live a better life and  to be a better citizen to the world around me.

And I get to see my favorite doctors. Don’t tell Julian but my crush doctor is here. And I can’t wait to see her.

Today is a good day.