Quinn has always known she had “bad kidneys.” Ever since ever we’ve been talking about how one day she’d need a kidney transplant, how she has to take a lot of medicine and how little kidney function would/does impact her day-to-day life.
We always spoken to her on her level, trying to let her be a little girl without the weight of failing kidneys on her shoulders, but also hoping she would gain an appreciation for a new kidney when the time came. I think we have always been realistic of the kid’s understanding…that probably goes to our trying to give them some normalcy to it all and not have too many highs or lows emotionally when dealing with their challenges. We’re trying always to make them feel normal, within our world of abnormal.
So Quinn, has always known things about her are different. Most of the time she’s fine with being different but every once in a while she’ll say something about how her friend are able to do this or do that.
Last Friday we had a snow day and a neighbor girl came over to play. Age-wise she’s smack dab in between the kids and can play with either, which speaks to her ability to do a lot of things well – she’s flexible to be interested in Quinn’s likes and yet also Gage’s likes, which are completely different likes. She’s a charmer of a girl and both the kids enjoy spending time with her.
While I was home (no driving on ice for this southern girl) watching Quinn and this girl interact I was a little awestruck. I just all of a sudden noticed how much she was engaged in the play. She’s really playing fast now. By fast I mean she is keeping up with the play – whatever it is – which wasn’t her typical speed. She just moved (moves) slower than other kids her age (and sometimes kids younger than her) because she has special needs. Of the developmental kind.
Kidney failure is a slow-moving disease for which sometimes the symptoms creep up on you unnoticed. Not like debilitating itchiness or back pain, or lack of restful sleep, but like concentration and patience and follow-through. She did do most things, but just slower. Play, school, chores. She always needed help to keep up or we needed to slow down…last to finish everything.
I’m not the only one who has noticed. Her special ed teacher said he noticed something similar. That she was just doing better after the holiday break. Even her writing has improved; from wonky to straight letters, straight across the page with no lines. It’s like 3 months after transplant the light bulb just turned on, or at least the brain cells are getting enough blood with a working kidney and her body is getting rid of toxins instead of hoarding.
A new kidney means kidney function, which takes care of her body. And to those around her that want her off of dialysis and alive, it is amazing. But kidney function to the little girl? Energy to play, brain cells to learn, and the ability to use those things to build friendships and memories.
That’s what kidney function means to Quinny B.


Seriously. Is QB flashing the peace sign in this photo? Hats off to our brighter, more nimble, quicker, healthy little girl! oh, and thanks a LOT, Cheryl, for your love and your kidney.
I am gaining more appreciation for the benefits of avoiding dialysis. As the patient I told you about rapidly ticks down his dialysis clock before his decision to stop, I see his wife’s face and the stress as she visits, knowing the visits won’t be for long. I’ve seen him be more reluctant to try things lately, because he doesn’t feel well and is in pain (related to his ICU stay, not dialysis). And yesterday I had the experience that will give me the strength to cope when I have to say good-bye in a month or two: I happened to jump on the elevator with him as he was being taken out for dialysis. The paramedics were joking with him and he was pale and quiet with his eyes closed, so far from his usual. You could see him dreading it. Then I talked to him and he lit up for a few minutes and as per his usual gift, made me feel good about myself despite how bad he clearly felt. I think he is able to do this because he knows the end is coming. 6 more sessions. And the worst for him, I just realized, I hope he doesn’t know: when the toxins build up for him he becomes the opposite of himself: angry, yelling, and self-centered. I’m sure that will be those last few weeks. I hope he never knows.
Wow, can i be more depressing in a comment that should be happy, should be about how awesome it is that she is doing so well?
Sorry….
Ya know the thing about celebrating the good is thinking about the bad stuff and that is what this post is about Just Me.
Leslie I think that is an accidental peace out…yes cheryl rock da house!
I am a lurker (currently delurking lol). As a special ed teacher, I want to thank you for everything you post. You have given me a ton of insight on how to help my students and definitely a bigger appreciation for my job. I also wanted to tell you that you have 2 of the cutest kids I have ever seen!
Quinn is beautiful, just beautiful, inside and out.
J
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